Ataxia Connection hosts monthly Support Group Activities which include Support Group Meetings and Social Events. The organization also hosts Fundraising Events throughout the year.

Support Group Meetings – During each Ataxia Connection support group meeting, an outside expert educates the group on a topic of interest to our members. Ataxians and care partners then divide into two groups to discuss the issues and emotions at the forefront of their day with the assistance of certified mental health therapists. Ataxia Connection’s support group meets on the third Saturday of every other month.

To join virtually via Zoom if you cannot attend in person, email info@ataxiaconnection at least 48 hours in advance for the link.

Social Events –  Those with Ataxia and their caregivers often feel isolated. To counter that, Ataxia Connection has social events on the third Saturday during months the support group does not meet.

Although all events are planned and scheduled in advance, they may be subject to change

Ataxia Connection Fundraising Events –  The fundraising events provide a fun way for the community to financially support Ataxia Connection’s mission to help those affected by Ataxia through direct assistance, community and professional education and awareness, support for care partners, and funding for medical therapies, equipment, and research. Opportunities to attend, donate, or volunteer are available for each event. Our signature fundraising events include:

  • The Gala
  • Golf Challenge
  • Trivia Night
Loading Events

For our May Support Group Social Activity, several members of our group will be attending the National Ataxia Foundation’s Annual Ataxia Conference in Orlando Florida from May 27-June 2, 2024.  Ataxia Connection is honored to be able to take a group each year to the event to learn more about ataxia and meet other ataxians and care partners.  We will be traveling this year with 30 individuals to attend the conference.

Deadline for in person registration is complete, however, virtual registration is available until May 20, 2024.  Please contact us at info@ataxiaconnection.org if you are interested in virtually attending the conference from the comfort of your home.  Ataxia Connection will pay the cost of virtual registration for support group members in our service area of Nebraska and Iowa.  

For more information on the conference, visit the website at https://www.ataxia.org/2024AAC/