Ataxia Connection hosts monthly Support Group Activities which include Support Group Meetings and Social Events. The organization also hosts Fundraising Events throughout the year.

Support Group Meetings – During each Ataxia Connection support group meeting, an outside expert educates the group on a topic of interest to our members. Ataxians and care partners then divide into two groups to discuss the issues and emotions at the forefront of their day with the assistance of certified mental health therapists. Ataxia Connection’s support group meets on the third Saturday of every other month.

To join virtually via Zoom if you cannot attend in person, email info@ataxiaconnection at least 48 hours in advance for the link.

Social Events –  Those with Ataxia and their caregivers often feel isolated. To counter that, Ataxia Connection has social events on the third Saturday during months the support group does not meet.

Although all events are planned and scheduled in advance, they may be subject to change

Ataxia Connection Fundraising Events –  The fundraising events provide a fun way for the community to financially support Ataxia Connection’s mission to help those affected by Ataxia through direct assistance, community and professional education and awareness, support for care partners, and funding for medical therapies, equipment, and research. Opportunities to attend, donate, or volunteer are available for each event. Our signature fundraising events include:

  • The Gala
  • Golf Challenge
  • Trivia Night
Loading Events

“Articulating Ataxia”

How to communicate ataxia effectively, consistently, and quickly. The “elevator speech” – things caregivers, doctors, or hospitals should know about ataxians.  This will be a fun interactive session led by two of the organization members.

Location – University of Nebraska at Omaha (UNO) Community Engagement Center (CEC) 6400 South University Drive Road North, Omaha, NE 68182 from 11:00am to 1:00pm – Lunch provided

Join virtually via Zoom if you cannot attend in person, email for the Zoom link no later than 24 hours prior to the event

Support Group New Format – Find seats, grab your lunch, share announcements for the group, introduce ourselves to the group, and listen to the speaker. Around 12CST (noon), we will split the group between ataxians and caregivers for group discussion led by our social workers.